This is a hard goal to achieve, but it will help you in coping with the unpredictable and uncertain nature of scleroderma. You cannot let yourself be defined by scleroderma. It denies a sense of acceptance of the illness with the idea that you continue to be the person who you have always been. The word victim brings to mind being passive and helpless while the term person living with brings to mind an individual who is influenced by an illness but not defined by it. There is a difference between being a victim suffering from an illness and being a person living with a disease. Like with any change, it will take time to get used to it. I’m having a hard time dealing with the fact that I have Scleroderma. Young children and older adults can also develop scleroderma. The most common age to develop scleroderma is between 35 and 50 years of age. Some experts say that for every 7 people with scleroderma, 6 of them are women. It’s a rare disease and fewer than half a million people in the United States are affected. Scleroderma has few rules about who gets it and why. Your treatment will be based on your symptoms. Most people experience times when the illness improves and even goes into remission. For most people the illness becomes more or less severe over time. The severity of scleroderma varies a great deal from person to person. Unfortunately, there is no single treatment for the disease because everyone’s experience with the illness is different. It can help to control the disease and keep it from getting worse.
Scleroderma is a chronic illness that will not go away. This is what is often referred to as fibrosis or “scar tissue”. The extra collagen in the tissues can prevent the body’s organs from functioning normally. The cells do not turn off as they should and end up making too much collagen. In scleroderma, cells start making collagen as if there were an injury that needs repairing. In an autoimmune disease, the immune system mistakes a person’s own tissues as foreign invaders and attacks the wrong things. The normal immune system protects the body by fighting off foreign invaders such as viruses and bacteria. This means that a person’s immune system works against itself. Scleroderma is classified as an autoimmune disease. FOR NEWLY DIAGNOSED PATIENTS What is Scleroderma?
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